Awake!

Robbie woke around 6:30 and was not very happy. He complained about both ears the tube in his neck and the groin area all hurting. He had a few sips of apple juice and 1 bite of jello and another dose of meds. He got sick about 30 min after and has had only 1 small sip of apple juice since. Poor guy! We went outside for 10 min and watched brother and sister swim from the balcony.

Daddy and Trevor snuck to Ross when they got dinner and bought 2 more ps2 controllers so all four of them could play a video game together. Robbie seems pretty content at the moment sitting on the couch playing a game. I hope to get him back to bed in a bit for hopefully a well rested night.

Done

We got to see Robbie in recovery around 2:00. He was crying and complaining of pain this time which I wasnt expecting because he was so calm during the combined in March. After some good meds he calmed a bit and has been sleeping since we got back (its 4:51 now). Tom went and got the family some food and I sat as long as I can to eat but ended up getting up many times to make sure the little guy was still sleeping. I am praying when he wakes he will ask for food or a drink and be in better spirits.

The surgery went well according to Dr Roberson. Robbies head is wrapped in a purple bandage as you can see in the picture. He has a drain tube that comes out the top of his neck until Wednesday and a stitched on sponge on the back of the left ear. The nurse showed us where they took skin from the groin area and it looked pretty good. We did not get a chance to talk with Dr Reinisch before we left because he was working on another patient. We do not have any post ops in LA and will head home Wednesday after our post op at the CEI.

I will post pictures of Robbie when he is a happier camper hopefully later tonight. Enjoy some from Great America on Saturday.

Waiting

Well, things have changed a bit from what we originally thought. Last night at the preop with Drs. Reinisch and Roberson they checked Robbies ear out and yes it had an exposure and yes the medpor needs to be changed out. This was a big blow to us and I have to admit I was in a bit of a state of shock. They said Robbies retraction from the skin graphs shrinking was the worst they had seen. So the game plan today is to replace the medpor, replace the skin in the canal where the problem areas are, and replace the skin behind the left ear where again the skin graph shrunk. This means that today they will not release the medpor from the head because they don't want to do to much so that the skin can settle to the new medpor. Which this all means there will have to be another surgery in the future. I will post more when we get back to the hotel. Surgery should take around 3-4 hours.

Wow

Just saw a link to the combined surgery on youtube. The little blonde boy having surgery looks familar!!!!!!

http://www.youtube.com/watch?v=rxH4BwRHrFo

Eeeeeek

So as some of you may know Robbie had a bit of a day yesterday. He seemed to be a bit clumsy when I took him to daycare and from the car to the front door he walked into a fence, walked into a tree, and ate pavement. I told the teachers that he was having an off day and left. Well of course I get a call around noon and they told me Robbie had sat down to eat lunch at the same time as another kid and they hit heads and Robbie was bleeding from his canal. I thought perhaps it was the infection oozing and went to check it out. I jumped in my car and when I arrived and checked him over yes it was blood and not the infection . The ENT was in surgery so they scheduled an appointment in the morning and the ENT comfirmed that he had ripped the inside of the canal and the medpor was exposed. After calling both Reinisch and Roberson we can still wait until the Aug 17 surgery to address this. We are still dealing with the infection and will continue to do the daily regimin. I am now praying that these next 3 weeks speed by and actually looking forward to his surgery. I can not wait to get my little guy al fixed up.

Changes!

We have cancelled the Aug 7 surgery for stage 2 medpor down in LA and have rescheduled a combined stage 2 with both Dr.s Reinisch and Roberson for Aug 17 back in Palo Alto. Tom and I are very happy that we are able to again see both doctors and hopefully get our little guy all fixed up.
I am not 100% sure what exactly the surgery will be, but of course Reinisch will adjust the frame work, seperate the back of the medpor ear with skin graphs from the tummy area, and possibly clean up scaring. Roberson is going to most likely reline the part of the canal which has been giving us all the problems and possibly address the canal narrowing issue. We just have to wait and see at the pre op the night before.
This whole process has been by far stressful and confusing for us. Tom has been gone the past 2 months and that has put extra strain on our family. Things have worked themselves out in the last few weeks and we seem to be back on track and are now going forward with a positive attitude.

Hearing Test

Well the hearing test went well. The results bounce around from the last test at 1 month. Some are frequencies are better and some went down. At this point I am not to worried about anything hearing wise. We will just see how it continues to go. he is still in the normal to mild hearing loss bracket. I am happy with the results.

April 14 test

Freq-Db
500-30
1000-35
2000-30
3000-25
4000-20

July 2 test

Freq-Db
250-40
500-35
1000-25
2000-25
3000-45
4000-30
8000-30